A parent of a child diagnosed with achondroplasia on a meeting at the Ministry of Health: We were told that the protocol for the import of the medicine will be approved by June 10, and after that the Ministry of Finance will finance the issue of the import of the medicine within a day

The meeting between the representatives of the Coordination Council working on issues of rare diseases, the Ministry of Health and the parents of children diagnosed with achondroplasia was held today.

According to one of the parents, Makuna Gochiashvili, the protocol for the import of medicine will be approved by June 10, "and the Ministry of Finance will finance the import of the medicine within a day, when everything is ready."

"We met the working group of doctors, which is working on creating a protocol. We know that the protocol will be completed on June 10. Also, from the representative of the Ministry of Finance, who attended the meeting today, we know that they will finance the medicine within a day, when everything is ready. In addition, communication with Biomarin is in an active phase. The representative of the Public Defender gave us a guarantee that the involvement of at least 2 parents every week in the working group of the Coordination Council will be ensured. This is a guarantee for us that we will be able to follow the processes and we not miss anything," said Makuna Gochiashvili.

Parents will make a statement near the Government Administration today, at 22:00, whether they will continue or stop the rallies.