Parents of children diagnosed with achondroplasia stop 24-hour protest in front of Government Administration

Parents of children diagnosed with achondroplasia stop a 24-hour protest in front of the Government Administration. The parent of one of the children, Keti Begiashvili, stated about it near the Government Administration.

According to her, parents will attend weekly meetings held at the Ministry of Health and will be involved in all the work that will be related to importing medicine.

"On the 19th day, our 24-hour non-stop rally near the chancellery has ended. Today, parents attended the meeting of the Coordination Council at the Ministry of Health, where we heard in detail the comments of each doctor working on the protocol, where we were once and for all convinced that the protocol will be completed by the end of May. Also, we heard the statement of the representative of the Ministry of Finance and he said that the Ministry of Finance is ready and will allocate the funds. We, the parents, will be involved in the weekly working meetings that will be related to importing the medicine. Therefore, the parents decided that since we have a lot of work ahead of us and we need a calm mind, and first of all we need our families, we are stopping the 24-hour rally near the chancellery," said the parent.

For information, parents of children diagnosed with achondroplasia have been holding a 24-hour protest near the Government Administration for 19 days. They demanded the government to import and finance the necessary drug "Vosoritide" for their children.