Parents of children suffering from Duchenne muscular dystrophy met with the Public Defender, Levan Ioseliani.

The parents explain that the main topic of the meeting was the provision of medicines.

In addition, according to them, the conversation touched on the violation of the right to assembly and expression.

“Our children have the right to life and the state is obliged to do everything to protect life. We have the right to assembly and the state should not interfere and prevent us from assembling. Today the state does not protect the right to life of our children and today the state violates our right to assembly and expression as parents,” said the parent, Kakha Tsikarishvili.

Zakro Gvishiani, the chairman of the organization “Together to Fight Duchenne Muscular Dystrophy,” stated that Levan Ioseliani was provided with detailed information about “the violations that were committed during this period.”

“We reported in detail to Levan Ioseliani about the violations that occurred during this period. Naturally, we started the conversation with the main demand, which is access to treatment and medicines. We have been unable to receive proper conditions in this process and we have to be there in inappropriate conditions. We agreed that we will provide the Public Defender with complete information, along with evidence, and they will immediately respond to each piece of information and violations that occur in the process of speech and expression,” said Zakro Gvishiani, the chairman of the organization “Together to Fight Duchenne Muscular Dystrophy.”

In turn, the Public Defender, Levan Ioseliani, noted that he offered the parents, within the scope of his competence, assistance in the process of communicating with the relevant agencies.

"It was an important meeting. Today, I call on the government to protect their expression standards and allow them to express themselves in the way they consider necessary and within the legislative framework that exists in Georgia. At the same time, we will continue to work on this issue in the future. I also proposed, within the limits of my resources, to facilitate the relationship between them and the relevant agencies, the mediation process, so that ultimately the process is resolved in the best interests of the children. This process should end in a way where parents and children will be satisfied with the outcome. I think there are resources for this. Parents are quite constructive in this direction. They are trying to show maximum cooperation towards the state. I hope that the state will also have such an approach and this process will be successfully completed," Ioseliani said.