Mikheil Sarjveladze on Duchenne muscular dystrophy treatment: Work on medications will continue through a special working group

Georgia’s Minister of Health, Mikheil Sarjveladze, says work on providing medication for children with Duchenne muscular dystrophy will continue within the framework of a dedicated working group.

Speaking at a briefing following a meeting with parents of affected children at the Government Administration, Sarjveladze stated that the working group format is critically important to ensure the best possible protection of patients’ interests, not only regarding access to medication but also across all areas of care and support.

“Work will continue in the format of a working group. This is critically important and necessary to ensure that, not only in terms of medications but in all other areas as well, there is an opportunity to maximize the fulfillment and protection of the best interests of children and patients. Parents and patients will be the first to receive information about any developments. Naturally, the public will also be fully informed about the progress of the process,” Sarjveladze said.

The minister also thanked the parents for their engagement in the process and expressed gratitude to Prime Minister Irakli Kobakhidze for his involvement in addressing the issue.

Earlier, the prime minister announced that a special working group would be established, bringing together representatives of the Ministry of Health and parents of children with Duchenne muscular dystrophy to work on securing access to specific medications for patients.

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