“The deadline for bringing in medication for Duchenne muscular dystrophy is already approaching a critical point. If we have no results in the next few days, we will have to turn to the public for help again,” Kakha Tsikarishvili, the father of a child with Duchenne muscular dystrophy, wrote on social media.

He said they are not speaking publicly about the negotiation process in order not to interfere with it.

“The deadline for bringing in Duchenne medication is already approaching a critical point.

“In the meantime, we have lost another child...

“We are not making the negotiation process public because we do not want to interfere with it, but if we have no results in the next few days, we will have to turn to the public for help again,” Kakha Tsikarishvili said.

For reference, 17-year-old Saba Makarashvili, who had Duchenne muscular dystrophy, has died.

According to the organization “Together We Fight Duchenne Muscular Dystrophy,” the patient died while under anesthesia following orthopedic surgery.

It should also be recalled that in early June, Georgian Prime Minister Irakli Kobakhidze said that a working group would be established to actively work on providing specific medications for children with Duchenne muscular dystrophy.

He said that a final decision on the procurement of specific medications would be made taking into account various factors, including the terms offered by pharmaceutical companies.